Fundraising for a Brighter Future: Why Fundraising Matters
Developing individualized therapies for ultra-rare diseases is a monumental task, requiring significant resources and unwavering commitment. By fundraising, we not only accelerate progress for the KIZ Therapy but also provide the foundation for scaling our approach to help more families in need.
Through our fundraising efforts, we aim to:
Fully Fund the KIZ Therapy:
Cover costs for preclinical research, manufacturing, and regulatory submissions.
Bring the therapy to clinical trials, offering hope to patients with the KIZ mutation.
Expand to Other Families:
Build additional scientific plans for other inherited retinal diseases.
Provide resources to families to pursue personalized treatment paths.
Mobilize a Community of Support:
Engage donors, industry partners, and advocacy groups.
Create sustainable funding mechanisms to drive long-term impact.
Developing an individualized drug costs an average of $1.5 million per patient. With over 12 million Americans affected by ultra-rare diseases, the need for support is urgent. Every dollar raised helps turn an impossible dream into reality.
Statistic Highlight:
$1.5M: The average cost of developing a single therapy.
There are many ways to contribute to our mission:
Donate: Every contribution, big or small, makes a difference.
Spread the Word: Share our story with your network.
Partner with Us: Engage as a corporate sponsor or grant funder."
Every dollar raised directly impacts families living with ultra-rare diseases. By funding groundbreaking therapies, you’re giving families hope for a brighter future.
"With your help, we can change what’s possible for families like mine." – Steven Ringel, Founder of Kizuna Foundation